Taking in the world

Just a few glimpses from this past weekend with our little miracle baby. It's so exciting to watch him experience new things and take in the world for the first time. He is such a curious little guy and loves any music or toys with noise. He LOVES to be held and talked too. One of the hardest factors regarding the trach was that we would not by able to hear him anymore but that is kinda ok now. It's amazing how easily you learn to read his eyes and face and know what he is thinking or how he is feeling. And again, we are being given little gifts...BIG gifts...like hearing a few small noises. This weekend he had the hiccups and I could hear them. It was so great.

I wish I could explain how it feels, I wish everyone could feel the way we feel right now... all of the things we imagined and hoped for him when he was in the womb or right after birth are gone right now. And it's ok. Everything has been stripped away except the bare basics and turns out that's what's most important. The fact that he can breath now, that he can smile & laugh, that he can sleep peacefully - the basics of life and he finally has them. That's more than he has ever had and it's all we need for him. A lot of the nurses and doctors at his new home have treaded lightly with us as we have discussions and I am quick to tell them not to worry about the words they have to say to us, we have heard worse and faced worse. Right now we don't care about tests results & statistics, we are celebrating every small (HUGE) gift that Jackson is giving us!