Monday, February 28, 2011

My diva

Every girl needs a little fur in their life right?! Neva has had her's waiting in the closet since she was in the NICU thanks to her Grandma Connie! We were invited to a house warming party for one of Brian's co-workers and it was the perfect time for Neva and her fur to make their social debut. She was the hit of the party!!

Can you even stand it? In the words of Rachel Zoe - bananas!

P.S. Sigh...it's official, my daughter has better clothes than I do!

Tuesday, February 15, 2011

Greatest day ever!
























Everyone has great days right? But to know beyond a doubt that you are experiencing the greatest day of your life, to be able to savor every minute of it, is pretty cool. This happened last Thursday when I spent the day with Jackson. For the first time in his life he was a happy, content, relaxed baby. He was everything we hoped he would become - but feared so badly that he never would. He was just like his brother and sister, he was so "normal" that it felt strange!!

When you are in the mist of such an intense battle it's easy to forget the small - yet important - details but they find their way back to you. On Thursday I was able to reach into J's crib and pick him up. Yea I know mom's do that everyday right? We don't. We haven't been able to do that since the day after Thanksgiving. For the first time I could pick him up, hold him, play with him, KISS HIS BEAUTIFUL FACE! The small things that we have not had these last few months and when they started happening on Thursday I realized how badly my heart had longed for those moments. Even though the trach is a sacrifice we are already being given so much in return. God is giving us the gift of getting our son back! We no longer have to stand on the sidelines while a nurse cares for him, we no longer have to sit perfectly still while two nurses work to get him in our arms and then hope he can tolerate being held.... we no longer have to watch him pass his days contained to a crib....and so much more.

Like I have said before J gets a firm grip on anything he can grab and last week it was my finger. When I assumed he had fallen asleep I started to pull my hand away and he gripped even harder and gave me a little smile. I said "Ok my love, I hear you, let's hold hands for as long as you want." I think we both needed it!!

Auntie comes to visit

Auntie came to spend the weekend with us so Dad could be in Philly with Jackson ... and also to get some hands on practice for her baby Rhew! When she first arrived she was so sad when the babes went to bed but the next day she was doing the countdown to bedtime just like we do! She is such a great sister, aunt, and baby Rhew is going to be so lucky to have her as a mom. Note she even has the trademark wet shoulder drool mark!!

Neva, Matthew, and Jackson cannot wait to meet their cousin this summer!!

Yum yum yum!

Matthew got his first taste of cereal this week! He gets to play with this "new toy" every morning around 8:30 and we ALL enjoy it! He makes a funny face when he first tastes it but then seems to eat most of what I put in his mouth. He squeals in delight as he is eating it and rarely spits it out. He doesn't even try to put his hands in it that much! As usual Matthew makes life easy on mom. Neva watches us intently and I keep telling her that if she would learn to hold that head up she would be next!

Monday, February 7, 2011

We're 6 months!

The babies are 6 months old, can you believe it?? I wanted to update everyone on their latest milestones and shenanigans!!!



Neva has really opened up and started to explore the world this month. She is holding her head up well, cautiously reaching for toys & then quickly pulling her hand back when she touches something! She has found her hands and plays with them all of the time, preferring her right pointer finger to suck on most days. She has become more needy and most of the time the only cure to her fussiness is to pace around the house in circles with her. I consider it my daily workout! She is starting to drool a lot so we know that teething is just around the corner. She loves to be talked & sang too. Based on her current behavior she has quite the temper and there are times that I can already see her as a 3 year old on the floor banging her fists and having a tantrum!

Neva weighs 11lbs 6oz and is 24 inches tall. She is not on the growth chart yet and based on her growth tracking she probably won't be until at least 2 years old. She also just started taking Zantac for her acid reflux.

Her biggest achievement is that she can roll from back to front! Yes that's right! She is doing the hardest one first! She really does love a challenge.



Ok...yes he gets a lot of pictures!!! Now that Jackson no longer has the breathing tube in we can see how far he has come developmentally. He makes eye contact with you when you talk to him and follows you around the crib and room with his eyes. Jackson smiles. (That's enough said right there!) The smallest things make Jackson smile! When a person talks to him, his toys, taking apart his trach tubing! He loves his mobile and crib toys - they really crack him up at times. (Notice him staring in amazement at his mobile in the picture above!) He LOVES music. He has won the heart of his music therapist at CHOP and she comes by daily to sing to him or play the guitar. He lays so still and just stares at her. His behavior amazes everyone - to see Jackson be still - it's a rare thing!! He kicks his legs constantly and rubs his feet together so much that we joke he is going to start a little fire in his crib. He has his hands open all of the time and can get a strong grip on anything he can reach. We think this is one of those cool things your body does - take away one sense/ability and all of the others strength so quickly.

Jackson weighs 11lbs 10oz and hasn't been height measured. He is very long though, just like his brother. It will be interesting to see if he stays skinnier or "chunks up" like Matthew!

The list of his achievements could go on and on, starting with still being with us, however I will stick to the most recent! This past Friday (2/4) Jackson got to sit in a swing for the very first time! That day he also got his reacquainted with an old friend, his bottle. He drank 3mL's of formula before he exhausted himself!


We have shared the pictures of Matthew's awesome smile so I wanted to show a different side of him...what a huge chunkers he has turned into! I tell him all of the time that he is growing way too fast, please slow down! Matthew is showing himself as my sensitive little boy. Anytime something tough happens - shots, a raised voice, a little bump of the head -he gets very upset and requires a lot of consoling. He loves his bath and loves to be naked. If he is fussy or not feeling well we go right to "his happy place" which is the changing table. The more clothes we get off him the happier he gets! He is now reaching and holding onto toys. Instead of a passie he prefers both hands shoved into his mouth for sucking. That along with all of the drool tells us teeth are imminent!

Matthew weights 14lbs 8oz and is 26 inches tall. He is in the bottom 5% of the growth chart of weight and 35% for height. That's for a full term 6 month old. Basically he has already caught up! He will be visiting a specialist in the next week to determine if he needs treatment for a flat spot on the right side of his head that has been there since birth. He may require a few weeks of living in a helmet!

Matthew's biggest achievement is rolling from front to back, taking a whooping 7 oz bottle each feeding, and.....a sign off to have cereal! We just have to get the high chair and find a time that mom & dad are both available for the big event!

Wednesday, January 26, 2011

Sometimes it's the big things...


You know how they say life is made up of the small moments? Well sometimes it's the big ones that really matter and Tuesday was full of big ones for the Groves. It was the start of a scary, stressful new world...but also the first step on the road to an amazing journey and to have our family reunited!!

Look at that beautiful face! I kept kissing him all over and he would squirm or move...I told him he better get used to it!

Monday, January 24, 2011

Sweet smile

How many people - babies - do you know that can smile even with a breathing tube in their mouth?!! Jackson is starting to share his sweet smiles and even some laughs with us! Little does he know that it's about to be over...no more breathing tube after tomorrow!!!